| Many thanks to David Kessler and Harper Collins for
their permission to excerpt sections of David’s book "The Rights of the
Dying: a companion for life’s final moments" for this section of answers
to commonly asked questions about death and dying. David began working
with the dying in hospice setting in the early 1980’s and has advised
President Clinton on hospice issues. He studied with Elisabeth Kubler-Ross,
and had visited with Mother Theresa at her home for the dying. We
recommend David’s book strongly for those who are dying and their loved
ones. |
For those who love one who is dying:
For the dying:
For those who love one who is dying:
It seems so unfair. His life is being cut short by this
illness.
Accepting that life is complete is perhaps the most difficult of the
steps toward spirituality. We find it especially hard to accept death when
it’s "premature." People will say "he was so young" or "she never got to
retire" or "there were so many things that he never got to do," as if those
lives had been incomplete. From our vantage point, it often seems so. It’s
hard for us to accept that a five-year-old who dies from leukemia or a
thirty-year-old felled by breast cancer has had a complete life. It’s only
when the deceased is eighty or ninety years old that we allow ourselves the
peaceful feeling that they had a complete life.
Every life is complete. The only two requirements for a life to be
complete are birth and death. People may say that life isn’t complete
without a family, or a career, or a certain number of years, but whether we
like it or not, birth and death define a life….There may be things we wish
had happened—more time, more opportunities, and more experiences. But their
absence doesn’t mean that a life was incomplete.
Return to Questions
I don't know how to act around him.
The dying want to be treated—and they have the right to be treated—as
living human beings until the moment they die. But often we "bury them
alive" by thinking of them as their diseases, by acting as if they are
incapable of making their own decisions, by negating their opinions, by
overlooking their desires, by withholding information from them, and by
omitting them from conversations. Without realizing we are doing so, we rob
them of their dignity, we rob them of their hope, and we rob them of their
very humanity. While we should never deny that the dying are dying, we
should also never treat them as broken or no longer whole. Despite their
illnesses, despite the fact that they are dying, they are still whole human
beings. Life ends at death, we must always remind ourselves, not a moment
before. To do any less than treat the dying as living human beings until
death is to take from them their self-images, their stories, their hopes,
and their dignity. We must continue to see them as they see themselves, to
listen to their stories, to support their hope, and to treat them with
dignity. We each carry an image of ourselves in our heads. It’s "who we are"
in our minds, a picture formed before we grew older, when we were most full
of life. We see ourselves as something that transcends what we’re going
through. And we continue to see ourselves at our fullest times of life no
matter how old we may be or how ill we have become. We cling to that part of
ourselves that is indefinable and changeless, that does not get lost and
does not deteriorate with age or disease.
What we see when we look at her is disease and impending death and so
often we refer to her as "my dying mother" when we ought to say "my mother,
who is dying." Thinking of her as "my dying mother" limits her, in her mind
and ours. She is and always will be a compete human being who happens to be
dying.
We tend to forget that dying still have stories to tell. Just as the
healthy tell bits and pieces of their stories every day, people facing
life-challenging illnesses want to tell us who they are, what they did for a
living, about their families, their hopes, their dreams, their regrets.
Listening to the stories of the dying brings out their dignity and
humanity. They have beautiful images of themselves, filled with stories to
tell. We must continue looking and listening, until the end, for their sake
and for ours.
Return to Questions
What do I do if his appearance is difficult to look at?
Often we find ourselves distracted by a loved one’s physical appearance.
It is common to feel terribly uncomfortable at the sight of a loved one
disfigured by illness or accident. The best thing to do under those
circumstances is to look into the eyes of the loved one and see those
changeless brown or green or blue eyes. Even when the body has deteriorated,
you can usually see the person inside by looking into the changeless eyes.
Seeing beyond the illness is one of the most meaningful gifts we can give
them. It is a greater gift to ourselves.
Return to Questions
He seems to be clinging to hope of a cure. Should I try
to stop this denial?
Our lives are based on hope. It is also the primary way in which we try
to control death. We try to control the "when" of death with the hope for a
cure. When we lose that, we hope to control how, where, and with whom we
die. We hope that we won’t lose control over our lives as we move into our
last months or day. We hope that it won’t hurt too much. We hope that our
loved ones will be able to get along without us. We hope that we won’t be
alone at the end.
Hope and fear grip everyone who struggles with a life-challenging
illness. The two emotions are as inevitable as they are constant, right up
to the moment of death. If we take away someone’s hope, we leave them with
nothing but fear.
As long as we’re alive, until the last moment, we can have hope. It is
our right.
Unfortunately, we often diminish that hope by negating, by judging, or by
denying. We rob the dying of their right to hope when we insist that they
"face reality," or when we plead with them to "stop looking for miracles."
Hope is a journey not a destination; its value lies in the exploration.
Hope is the way we live, and the journey of hope should last until we end.
This is very hard for loved ones and the medical community to understand.
Our thinking is limited: we only see hope in a cure and we feel hopeless
when we believe there is none. The dying, however, see the value of living
hopefully rather than hopelessly, and that is why they choose hope as their
companion on the final journey. Many find hope in support groups, where a
shared hopefulness improves the quality of life. Others find hope in faith
and spirituality.
Hope and reality needn’t clash. You don’t have to tell lies in order to
keep hope alive. I’ve sat with hundreds of people who were in their last
days, hours, or minutes, and I never once said, "There is no hope." Instead,
I say, "It looks like you’re gong to die but there’s still the possibility
of something happening. It’s okay to hope."
Hope should always be cultivated and never challenged. We can live for
weeks without food, days without water, but we can only live hours without
hope. As long as it is nourished, hope is like a strong vine that can grow
over and around obstacles. There are so many obstacles standing in the way
of our loved ones’ having hope that we needn’t add more by being "realistic"
or by playing "devil’s advocate." Allow those who are challenged to find the
paths that are best for them. Help them use their hope well.
Return to Questions
How do I know if he has the right doctor to be
supervising treatment?
Just as the dying have a right to hope, they also have a right to be
treated by physicians and nurses who can maintain a sense of hopefulness,
however changing this may be. Finding doctors who are good at inspiring hope
can be difficult, because medical professionals have been taught that death
is the enemy, that they should "fight, fight, fight!" until the end. To many
of them, death is the opposite of life, a terrible scourge to be destroyed,
a failure—their failure.
Some otherwise good doctors destroy their patients’ hope by telling them
not to seek alternative treatments. Other doctors, unable to study and adopt
every new idea that comes along, still remain open to new possibilities.
When the AIDS epidemic began back in the early 1980s, many of the cancer and
infectious disease specialists admitted that they had no answers and were
willing to let their patients explore alternatives. If asked about other
treatments, they said: "I don’t know about the alternative therapies you’re
asking me about, and I cannot endorse them. But please let me know if you
try them and I’ll monitor your progress and your lab results. We can learn
together." This approach helped to keep hope alive and helped many people to
improve the quality of their lives.
Return to Questions
Should we discuss the medical decisions to be made with
him?
As people’s physical condition deteriorates, their rights should not. We
tend to equate a loss of physical capability with a lack of mental and
emotional capabilities, and then we treat the dying as less than the living.
Being unable to speak anymore, for example, does not mean that you can no
longer think. That’s why doctors, nurses, and physical therapists are
trained to talk to comatose patients as if they were fully functional human
beings.
Being treated with dignity means being included in conversations about
one’s death and the decision-making process. We often try to protect the
dying by excluding them from these conversations. We go out of the room to
discuss what we’re going to do with Mom, for example, feeling as if we’re
somehow protecting her by not allowing her to know about and participate in
the discussions about her care. But we’re not protecting her. Whatever
happens as a result of that conversation, happens to her. We actually harm
Mom by denying her the right to make her own decisions, by acting as if she
were too fragile or incompetent to participate in her own life. We strip her
of her dignity and her rights as a human being by leaving her out of this
process.
Despite their illnesses, despite the fact that they are dying, they are
still whole people. Treating them as such preserves their dignity and their
hope. Human beings deserve tenderness, dignity, honesty, compassion. And
most of all, they deserve an acknowledgment that life ends at death and not
a moment before.
Return to Questions
I'm having such difficulty emotionally dealing with the
knowledge that he will die. I just don’t know what to say.
We tend to have trouble expressing our emotions and feelings in the best
of situations. We have even more difficulty accepting the feelings and
emotions of others. These feelings become even more difficult in times of
crisis, when our fears are realized and our feelings are raw. We are afraid
to express ourselves. We fear we’ll be abandoned, and we fear that our
feelings will be bottomless. But if we express ourselves during the dying
process, what we share during these difficult moments will be our greatest
comfort later.
We have a primal need to express feelings. As death approaches, the need
to share and to speak from the heart grow. We rob both ourselves and those
around us when we erect barriers to intimacy. It is not only the job of
those who will live to comfort those who will not. Just as we comforted each
other in life we should continue doing the same as death approaches. Even
though we don’t know how to say good-bye and we don’t want to say good-bye,
if we can break through our reluctance and find the courage to express our
emotions, we can bring our relationships to new levels. We can complete
them. Sharing emotions while grieving together is not surrendering to death.
Grieving in each other’s arms can raise us to new heights of intimacy and
love.
Return to Questions
Should I talk about the fact that he’s dying with him?
Our tremendous discomfort with death can make it difficult or impossible
to talk with a dying person about what’s happening. Many times, family and
friends talk about everything except the fact that someone is dying. I often
go into a hospital room, alone with the patient and ask: "What’s happening?"
Many of them calmly reply: "I’m dying." Others are sarcastic or angry or
frightened, upset that I seem to have missed the obvious. But in every case,
the topic of death is opened. When I say, "Your family and friends think
that you can’t talk about dying," they usually replay, "No, they
can’t talk about it." And then we have discussions about disease and dying
that later amaze their families. They wonder how their loved ones can talk
about death with a total stranger, but not with them.
You never know what someone needs when going into a conversation. The
person you are talking to may not know either for dying is always a new
experience. The emotions of the person who is dying may change from day to
day or moment to moment.
It’s all right to talk about dying if the person is receptive. Each
situation has to be gauged individually. Not talking about death won’t make
it go away, but talking about it can bring life back into your relationship.
Talking about death is like stepping into uncharted territory. It can be
liberating and cathartic.
Sometimes there can be too much talk of emotions and pills and surgeries
and death and dying.
There are no rules, except to play it by ear and listen to what the dying
have to say.
Return to Questions
How can I help him the most?
Allowing the dying to be heard is one of the greatest gifts that we can
offer them. Medical professionals are taught that listening is a way of
gathering information and assessing a patient’s physical and psychological
condition. Even more, listening itself is a powerful way of giving comfort.
Listen to them complain. Listen to them cry. Listen to them laugh. Listen
to them reminisce. Listen to them talk about the weather or talk about
death. Just listen.
People who are facing life-challenging illnesses will tell you everything
you need to know: how they feel about their situation and---if they’re
comfortable talking about it—how they would like to die.
As we listen to those facing death, we hope that they will share with us
their beliefs and thoughts, perhaps comforting us. But sometimes what they
tell us doesn’t comfort us. Sometimes we don’t agree with what they tell us;
sometimes we are disturbed to learn that their ideas on death challenge our
own. Remember that the dying have the right to believe what they want and to
express their feelings about impending death in their own way, even if their
feelings are heartbreaking or devastating for us to hear. It is their right
to live and die as they choose.
We can cry with our loved ones, we can analyze treatment strategies, we
can disagree, and we can deny the situation entirely, but in the end, the
best thing we can do is to listen. And when they tell us that the end is
near, we need to listen even more carefully.
Return to Questions
He doesn’t respond even though he is alive. Can he
hear me?
Ultimately, we will cease to have the luxury of verbal communication. Due
to illness, unconsciousness, or the nearness of death, our loved ones at
some point will no longer be able to speak. Many assume that they no longer
hear as well, simply because they don’t seem to respond when spoken to. At
this point, many people say that they wish they had said this or that, or
had said "good-bye."
It is widely believed that hearing is one of the last senses to go, which
is why medical professionals are taught to behave as if patients can hear
right up to the end. When people ask me if their loved ones can still hear
them, I always answer yes. If not physically, then they can hear you
spiritually. They may not be alert, but if you say something from your
heart, they will hear it in theirs.
You can still say what you wish you had said, even if your loved one is
in a coma. Say it out loud if you can; if circumstances do not permit
speaking out loud, say it in your mind. Much of our communication is
nonverbal. Much can be said with a smile or a touch.
When you do talk to them, share your thoughts and feelings. Tell them
things that would be of interest to them, such as the latest news or stories
of mutual friends and family. Sometimes you may do a lot of talking, other
times you may not. Don’t be afraid of the silence. Holding hands or even
just sitting nearby can communicate all that needs to be said.
Return to Questions
He and I have some old "issues" that we never
addressed. Now that he’s dying, I don’t know if I should say anything about
them.
Even though they may be difficult, the last days you spend with your
loved ones are ones you’ll remember vividly. At times you may feel as if
you’re walking on eggshells, but everyone should be allowed to say what
needs to be said. This is a sacred time because of the authenticity of the
emotions that occur. We must let ourselves and our loved ones express
feelings and emotions, no matter what the reactions may be. I am often in
awe of expressions of feelings between the dying and their loved ones. These
feelings are among the purest found in life. Honoring these expressions is a
holy obligation we have to each other.
At every stage of life, we find peace and fulfillment in our
relationships that are current. A current relationship is one in which both
have said everything they need to say to each other, whether it is
supportive or challenging. Our relationships are current when we no longer
harbor unexpressed feelings.
When there is a blockage in the relationship, however, when things have
been left unsaid, we are bound to be uncomfortable and unhappy. That
blockage and discomfort are most pronounced when things have been held back
for years and someone is gravely ill. Ironically, most of us are less likely
to make a relationship current when a person is ailing, for fear of doing
harm. But if those unspoken thoughts are not expressed, they may never be.
The urgency of illness is a golden opportunity to push through ancient
blockages and talk openly and honestly.
There is a difference between getting it out and getting even. You can
express negative feelings without hurting someone.
It is a deeply moving experience to be comforted by the dying, one that
can be extremely important to them. I remember saying to my father, shortly
before he died: "I can’t imagine a world without you."
We tend to look for comfort outside the sickroom and away from our loved
ones. But we shouldn’t deprive them of chances to be loving people. That’s
what they wanted to be in life, and that’s what they continue to want to be
until the end. By opening up we include them in our life and our grief. We
are honest with them, and we honor them with honesty.
Family members encourage each other to keep stiff upper lips, not to
openly cry or grieve. I always suggest the opposite: Share your grief. Cry
in front of someone, and cry with them. Witnessing grief gives the witness
permission to grieve.
It’s not a matter of if you will grieve, but when you will grieve.
Don’t miss the opportunity to grieve with another who shares pain. Those who
grieve well, live well.
Return to Questions
I know that he didn’t want to be kept alive by
artificial means, but I feel like I’m ordering his death by asking the
machines to be shut off.
It is natural to feel guilty about turning off respirators or other
medical equipment. Many people say, "I want them to die naturally, not
because the respirator was turned off." We forget that respirators are
artificial. Feeding tubes are artificial. The most natural thing in the
world is nature taking its course.
Return to Questions
How do I know when death is near?
Dying is like shutting down a large factory filled with engines and
assembly lines and giant boilers. Everything does not suddenly go quiet when
the "off" switch is pushed. Instead, the machinery creaks and moans as it
slows to a halt. Unless suddenly felled by an accident, a heart attack, or
other sudden trauma, most of our bodies are like those factories, creaking
and moaning as they shut down. It can be difficult to remember that the
winding-down process is natural. No matter how prepared we think we are for
death, we do not let go of life easily.
Death is as primitive as birth. Often loud and messy, it is always deeply
authentic. We can find peace and dignity in this authenticity.
Some of the common signs that death is near:
- Sleeping longer periods. Difficulty in rousing from sleep may occur.
- Confusion, anxiety and restlessness may be present. Rambling,
disjointed speech.
- Eating will decrease as the desire for food and drink will diminish in
the body’s effort to conserve energy
- Vision may become blurry or dim. Hearing is usually the last sense to
decrease.
- Breathing may become irregular due to the decrease in circulation of
blood and build up of waste products in the body. You may witness 10 to 30
second periods of no breathing (called apnea) alternating with periods of
rapid breathing.
- Fever and profuse sweating are common.
- Mucus in mouth may increase and collect in back of the throat causing
a rattle sound.
- Arms and legs may feel cool to touch; skin on limbs may deepen in
color and appear mottled.
- Shouting. It is not uncommon for a person to let out a yell that comes
deep from within at the moment of death. This is more of a reflex than an
attempt to communicate.
- A bit of foaming at the mouth is natural at the time of death.
- When death occurs respiration will cease, bowel and bladder may
suddenly empty and skin color becomes ashen or pale.
Even though watching someone physically die is an emotionally painful
experience, most people feel as if they have shared a precious and profound
moment with their loved one. Take your time. Many people believe that the
spirit is still close to the body immediately after death. Talk to her. Hold
her hands, Caress her. Pray for her. Wish her well on her journey. Do what
feels right for you. Even though the physical connection has just ended, the
emotional connection continues.
Return to Questions
How will I deal with the grief and deep emotional pain
of losing someone I love?
I understand how hard it is for you to watch someone you love slipping
away. The pain is excruciating, the feeling of devastation unmatched by
anything you have ever known. Losing a loved one is one of the hardest
experiences any of us will have to face, but there are some things that you
can do to make it easier on yourself and those around you.
- Allow yourself to grieve. You can’t ignore it or run away from it.
Eventually it will catch up with you. Grief is a necessary part of the
healing process. It will subside, but you must go through the various
stages.
- Don’t feel guilty because you are continuing to live. You are not
responsible for what has happened. Accept that some things are out of your
hands.
- Let the dying know that it’s okay to leave—that you will be all right
without them. You’ll miss them for the rest of your life, but you would
not want them to stay if it continues their suffering.
- Don’t feel guilty if you find yourself preparing for your loved one’s
death. But it does help prepare you for the inevitable and is nature’s
defense against deep pain. (Ancient Egyptians spent their entire lives
preparing for death).
- Say what you want to say now, while there’s still time. You may still
have something to say or something to do for your loved one. "Do it
fearlessly," one patient told me. Let your loved one die with an open
heart—yours.
- To the best of your ability, try to accept what is happening and the
way it is happening. As difficult as it may be to understand and accept,
dying is a part of life.
- Take care of yourself and let others support you. Seek help from a
therapist, a support group, your religion, or whatever else comforts and
strengthens you. Try to stick to some kind of regular routine, especially
during this very stressful and upsetting period. Believe it or not, it
will help normalize your life and make you feel better.
- Above all, be gentle with yourself. It really will get better with
time, although you may not believe it right now. Time heals all wounds,
and although your loved one will no longer be physically present, you will
always retain the love you have shared with that person. Those whom we’ve
loved and who have loved you in return will always live on in our hearts
and our minds.
I wish you peace and healing.
Return to Questions
What are the rights of the dying?
- The right to be treated as a living human being
- The right to maintain a sense of hopefulness, however changing its
focus may be
- The right to be cared for by those who can maintain a sense of
hopefulness, however changing this may be
- The right to express feelings and emotions about death in one’s own
way
- The right to participate in all decisions concerning one’s care
- The right to be cared for by compassionate, sensitive, knowledgeable
people who will attempt to understand one’s needs
- The right to expect continuing medical care, even though the goals may
change from "cure" goals to "comfort" goals
- The right to have all questions answered honestly and fully
- The right to seek spirituality
- The right to be free from physical pain
- The right to express feelings and emotions about pain in one’s own way
- The right of children to participate in death
- The right to understand the process of death
- The right to die
- The right to die in peace and dignity
- The right not to die alone
- The right to expect that the sanctity of the body will be respected
after death
For the dying:
Return to Questions
I just found out that my disease is terminal. What do I
do?
Ask yourself what your goals are as you enter into the final phase of
life. Do you want:
- to continue on exactly as before, with no thought of what will come?
- to pursue aggressive care and treatment?
- to allow nature to take its course, without requesting heroic measures
or life-extending technologies?
- to take complete charge of your care?
- to let someone else decide what’s best for you?
The decision is yours to make, and whatever you decide is correct for
you. You have the right to make any and all decisions concerning the way you
die. No one can take the right to make those decisions away from you, but
first you must claim that right.
Whether or not you’ve decided to participate in your care, and whether or
not you’ve learned all you can, you have the right to expect continuing
medical care, even if your goals change from month to month, week to week,
or day to day. You may make one decision when you first get the diagnosis
and quite a different one after six months of chemotherapy. You may begin by
insisting on "cure" goals and later realize that a cure is not possible and
choose to adopt "comfort" goals. Perhaps you’ll move in the other direction,
changing your "do not resuscitate" (DNR) order to "do everything possible to
keep me alive." Your latest decision is the only one that counts. You have
the right to change your mind, and your changes of mind should be honored.
Return to Questions
What if I don’t want to live on machines?
If you find it difficult to talk about your wishes, you can express them
on paper via documents known as Advance Directives or Durable Power of
Attorney for Health Care. These documents speak for you when you cannot.
They allow you to specify the level of treatment you wish to receive,
anything from full heroic measures to nothing but painkillers to keep you
comfortable as you pass on. You can also designate a proxy, a person who
will make decisions for you when you cannot. Unfortunately, having an
Advance Directive may not be binding if your family does not agree with your
wishes.
It’s important to select a strong representative to safeguard your
wishes, someone who will stand up for you, under pressure, even if they
disagree with your decision. Your first instinct may be to assign that
responsibility to the person closest to you, but that person is not always
strong or decisive enough to carry out your requests. It’s also vital that
you discuss your wishes with this person before designating him or
her as your proxy. Express your feelings clearly. Let her know that you
consider her help to be an act of love. Emphasize that she is giving you
something, not taking anything away. Emphasize that the disease will
kill you, not the directives, not the decision she may be called upon to
make.
Make sure your proxy has a copy of your Advanced Directives, and also
give a copy to your doctor to place in your chart when you go to the
hospital. Let your family know where they can find it quickly and easily.
Bring your family together for a discussion early on in the disease process,
or before you even get sick. Show them your Advanced Directives, let them
hear your wishes clearly, and discuss their concerns. Discuss them now
rather than over your hospital bed. It will be too late when you are in a
coma, at which point any relative may insist that you be kept alive, and the
doctors will have to keep the machines on. Afraid of being sued, the doctors
will err on the side of doing too much rather than too little.
Return to Questions
I am afraid that I will die in pain. What can be done?
With modern pain-relieving agents available, no one should have to
live or die with pain. Our medical providers have a duty to do all
within their power to relieve pain, for the dying have the right to be free
of pain. With proper medication and management, pain can be relieved most of
the time.
Although pain is a part of the death process, there is an arsenal of pain
medicines with which to quell it. But even in hospitals, surrounded by
brilliant physicians and dedicated nurses, too many of the dying are still
not given enough medicine. The problem is that there are rules. Patients and
their families and friends are puzzled and frustrated by nurses who say that
no more medicines can be given until such-and-such time.
Nurses care, but they often don’t understand how you are feeling. That’s
why constant reassessment of your pain is suggested. A patient’s pain and
the efficacy of treatment should be continually monitored. Pain should be
assessed:
- At regular intervals
- With each new report of pain
- At suitable intervals after each pharmacological intervention, such as
fifteen to thirty minutes after parenteral drug therapy (given in another
form other than by mouth) and one hour after oral administration.
Doctors worry about patients becoming addicted to powerful painkilling
drugs, as do many patients and their families. But the fear of addiction is
largely unjustified. The number of people who actually become addicted is
small, some believe as small as one percent.
Return to Questions
Do I discuss my illness with my children?
If you will be leaving children behind, you are facing a parent’s worse
fear.
Child specialist Kathleen McCue suggests that you do three things. Tell
your child that you are seriously ill, name the disease you are struggling
with, and tell them what you think will happen. Don’t offer more information
than is asked for, and let them ask questions at their own pace. If you feel
that you will not get better, explain who will take care of them and how.
Remind them that even though you will soon be gone, they will always have
memories of you, that they’ll never forget the times you had and the love
you shared. Tell them that these times and the love will live forever.
Some parents write letters or make videotapes for their children. Even
though they’ve passed on, parents can remain a part of their children’s
lives.
We hope that the words we leave our children will continue to comfort
them, that they will be symbolic of how we lived and how we died. The
teaching we do now will help shape our children’s perception of loss,
affecting many generations to come. We spend a great deal of time teaching
our children about life. This is a profound opportunity to teach them how we
care for loved ones in their last days, to help build their belief system
around death and loss rather than leave them with a mystery, and to model
for them how we honor the memory of our loved ones.
Return to Questions
What about God? Is there a lesson I’m supposed to learn
in this?
Some people believe that if they become spiritual enough, they will be
able to cure their diseases. That, however would be magic, not spirituality!
Spirituality is not a cure for disease. It’s our reconnection with
ourselves, with others and with life, eve in the face of death. It is our
seeking of peace.
The quest for spirituality is a search for a place of peace and safety.
Many people begin looking for this place during the final chapters of their
lives. They may do so through religion, on their own, or both. Whatever
approach one chooses, it should be honored and supported, even if [others]
think it is "incorrect."
Upon developing a genuine desire to explore their spiritual selves,
people go through five stages of spiritual reconciliation:
- Expression: Many people have trouble accepting the demise of their
physical selves because they’re blocked by anger. For healing to take
place, we must overcome our taboos and express our feelings…We fear that
we will be punished if we express our "ugly feelings, but in fact the
opposite is true. We are rewarded for releasing our anger by making
ourselves ready for peace.
- Responsibility: People have often said that facing a life-challenging
illness has improved the quality of their lives. Specifically, it helped
them take responsibility for their actions, thoughts, and lives. They know
that they’re not to blame for their diseases and that dying does not mean
they have somehow failed. They also understand that they have played a
role in all that has happened to them in life.
- Forgiveness: In the end, our diseases stop spreading, our hearts no
longer beat, and our minds cease thinking. So do our fights, grudges, and
judgments end. Whether we like it or not, our part of the quarrel will be
over, for we will no longer be here. They dying understand this
intuitively, which is why they often have a meeting with forgiveness. To
forgive does not mean to accept bad behavior. When we forgive, we release
ourselves from the binds of hates and hurts…Forgiving ourselves is just as
much a part of spiritual growth as forgiving others. Most people are very
hard on themselves at the end, remembering all the things they’ve done
wrong, whether little or large, and wondering if they can ever be
forgiven. I tell them that if they feel they cannot forgive themselves,
they should simply ask their God or Higher Power for help.
- Acceptance: We don’t have to like what we accept. We think that to
accept something is to somehow make it good or desirable. However, I think
we can own our feelings and accept what is happening. I believe
individuals on their deathbed can honestly say: "I don’t want to die," yet
accept that they are dying.
- Gratitude: Having expressed one’s feelings, taken responsibility for
all that has occurred, forgiven oneself and others, and accepted what is
now occurring, the person on a spiritual journey becomes profoundly
grateful for his or her life, for both the good times and the bad.
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